I can't do a raw vegan diet even if I wanted to, I have collagenous colitis. My Oncologist told me to eat whatever appeals to me. The care team just worries about unexplained weight loss.
Not true!!
My oncologist told me the same thing! There are a lot of myths concerning eating raw vegetables and how it relates to cancer! MY oncologist told me that if you do not have cancer that raw vegetables might help in cancer prevention. But that once you have cancer. The problem with as a blanket statement that raw veggies will cure cancer is a 100% true! But eating raw veggies might be beneficial and it sure could not hurt to do so!!I can't do a raw vegan diet even if I wanted to, I have collagenous colitis. My Oncologist told me to eat whatever appeals to me. The care team just worries about unexplained weight loss.
Sorry, just now noticed this post. Nah, mine was in 2000 - ancient history.This happen after we met there in Chattanooga???
Sorry to hear that. At least you have Geekbabe as inspiration. A Stage 4 diagnosis is no longer an automatic death sentence. Hope your mom can be as successful in fighting hers.I have been following this thread for a long while--it came more real to me yesterday when my mother was diagnosed with Stage 4 Lung Cancer that has metastasized to her bones (discovered while she broke her hip sitting down). Age 54.
And I thought of how inspirational your posts have been, so thank you for sharing and being so determined to live your life. Hearing about the various treatments, especially immunotherapies, I am sure will be helpful as she starts asking questions. Anyways, just wanted to say thanks!
Glad to hear you are continuing to whip cancer's ass. It truly is inspirational.You are most welcome!
I had a good scan on July 5th & got my 31st infusion of Opdivo yesterday, my only complaint thus far is fatigue. They put me on plain Claratin for bone/ muscle aches & it appears to be working well. The " burning mouth syndrome" is less today but that tends to flare at the end of each cycle. These however are small issues, easily treated and truthfully not unexpected as I am approaching 60.
Tell your Mom I still work & I also walk each day, Opdivo quality of life is MUCH better than traditional chemo.
Aw, some of my best memories are being awake & doing strange things in the middle of the night.Round 38 is done, WBC & Platlets are back up, Aching joints & slight fever this round, normal for me.
I have also not been sleeping, they started me on Remeron. I declined Ambien...lol, I don't need to be awake & doing strange things in the middle of the night
Round 38 is done, WBC & Platlets are back up, Aching joints & slight fever this round, normal for me.
I have also not been sleeping, they started me on Remeron. I declined Ambien...lol, I don't need to be awake & doing strange things in the middle of the night
Round 38 is done, WBC & Platlets are back up, Aching joints & slight fever this round, normal for me.
I have also not been sleeping, they started me on Remeron. I declined Ambien...lol, I don't need to be awake & doing strange things in the middle of the night
So how more rounds left for chemo? Thanks for the updates. Cheers.
I am stage IV & will be on treatment for life. When this stops working I become a clinical trial mouse
I've mentioned before in this thread how thrilled I am that the "new era" of antineoplastics is working so well for you - essentially turning your malignancy into a chronic disease. Given your intelligence, composure, and outlook; I was wondering if you had any thoughts about putting your experiences onto paper? I think you're in a fairly unique position as one in the midst of this transition from the "old school" to the "new school" with regard to cancer management. Certainly, we as a medical society are still incredibly early on in this transition and have a lot of work yet to do, but I do think there's an opportunity here to provide some insight from the patient side that could benefit both those afflicted, and those caring for the afflicted (family, friends, providers). I see your story fitting nicely into, or something akin to, Groopman's The Anatomy of Hope. Just some thoughts; would be happy to share more.
I wonder what you think of this:
https://www.youtube.com/watch?v=gcai0i2tJt0
Dr. Lissa Rankin: "Mind Over Medicine: Scientific Proof You Can Heal Yourself" | Talks at Google
I have mutations in my P53 & APC genes, except for trying to live as well as I can there won't be any self healing.
Round 41 is done! Met with the Pallative Care team for the first time. Every study I have read shows that folks who get Pallative Care early survive longer and have better life quality.
I have some psoriasis now & arthritis is rearing it's painful head ( my knees,,they scream) they took me off a few drugs including my Statin, they put me on a couple others. I can take Aleve but not everyday as I have colitis. The Aleve makes life a lot more tolerable
for sure
Our goal is to manage my cancer as a chronic illness, when that goal changes my Pallative Care team will let me know. This woman was great, she said " we both know how this book ends but together we will make this a very long book" She reassured me that my Oncologist is probably the best & the entire team stands behind me on my journey. There will be no hospice dumping a box of meds & a hospital bed & disappearing on me. Having a frank conversation & not hearing the words "brave" "inspiration " or " warrior " mentioned even once was comforting to me.
I am very glad I chose Mass General for my care, very grateful to them.
Sounds like a great palliative care team. I like the turn of phrase she used regarding the book, I may have to borrow that one. Glad things continue to go well. You're right, the literature on early palliative care is good and hopefully we, as an institution, start putting it into practice.