Thank you for the update, and thanks goes to theVrolok as well for bringing considerable knowledge in here and sharing it too.
Congrats on continuing to beat the odds with style. And remember, that's how ALL our stories end. Life is sweet, but nobody gets out alive. But some few people do beat cancer, even stage 4. For every new drug, somebody has to be the first to get the miracle.Round 41 is done! Met with the Pallative Care team for the first time. Every study I have read shows that folks who get Pallative Care early survive longer and have better life quality.
I have some psoriasis now & arthritis is rearing it's painful head ( my knees,,they scream) they took me off a few drugs including my Statin, they put me on a couple others. I can take Aleve but not everyday as I have colitis. The Aleve makes life a lot more tolerable
for sure
Our goal is to manage my cancer as a chronic illness, when that goal changes my Pallative Care team will let me know. This woman was great, she said " we both know how this book ends but together we will make this a very long book" She reassured me that my Oncologist is probably the best & the entire team stands behind me on my journey. There will be no hospice dumping a box of meds & a hospital bed & disappearing on me. Having a frank conversation & not hearing the words "brave" "inspiration " or " warrior " mentioned even once was comforting to me.
I am very glad I chose Mass General for my care, very grateful to them.
Round 42 done today, I scan again after New Year's. I have lived to see another Christmas
Happy Holidays everyone
Round 42 done today, I scan again after New Year's. I have lived to see another Christmas
Happy Holidays everyone
Truly impressive. 2 years without changes. Magnificent. Couldn't be happier. Happy New Year, and hoping 2017 goes just as well.Just scanned & I am stable! No lung changes since Jan 2015!
Had infusion number 43 today!
I also signed up to test my blood & tumor biopsy samples for CAR T trials. Should I need a new horse in future it's best to get preliminary testing done now. The good thing about this testing is that if my tumor antigens don't match, they ID targets & keep them on file so if they can engineer T cells with that antigen..well, here I am, the happy lab mouse
Round 42 done today, I scan again after New Year's. I have lived to see another Christmas
Happy Holidays everyone
Huh... you and my dad were born on the same day. Neat.I had round number 44 last Friday. Was feeling a bit dazed but well enough to attend a birthday party in my honor. I turned 60 thanks to science & medical technology!
I had round number 44 last Friday. Was feeling a bit dazed but well enough to attend a birthday party in my honor. I turned 60 thanks to science & medical technology!
I had round number 44 last Friday. Was feeling a bit dazed but well enough to attend a birthday party in my honor. I turned 60 thanks to science & medical technology!
Congrats! Enjoy the cake!I am still alive & kicking, a cake will be needed. I get round 52 of Opdivo this coming Friday. Two years on this amazing drug!
I am still alive & kicking, a cake will be needed. I get round 52 of Opdivo this coming Friday. Two years on this amazing drug!