Adenocarcinoma of unknown primary

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Squisher

Lifer
Aug 17, 2000
21,207
66
91
Anyone that can turn Red into a down right cordial person must have a little fairy dust left over to beat this cancer. Best wishes, you're always in my thoughts.
 

manimal

Lifer
Mar 30, 2007
13,560
8
0
Was just neffing a bit on the kitchen computer and started to write comment here. My kids walked over and asked what I was doing. I said I was writing a quick note to a friend who is sick.

The triplets just walked up and kissed the screen and said Feel better geekbabe!

They are five and half and after one asked did her mommy and daddy name her that?
 

Aharami

Lifer
Aug 31, 2001
21,296
149
106
good to see you still around here, Geekbabe. Good luck with kicking the tumor's ass!
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,188
2,430
126
www.theshoppinqueen.com
Was just neffing a bit on the kitchen computer and started to write comment here. My kids walked over and asked what I was doing. I said I was writing a quick note to a friend who is sick.

The triplets just walked up and kissed the screen and said Feel better geekbabe!

They are five and half and after one asked did her mommy and daddy name her that?

LOL, they sound adorable and smart, thank them for me please
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,188
2,430
126
www.theshoppinqueen.com
good to see you still around here, Geekbabe. Good luck with kicking the tumor's ass!

Opdivo is helping my immune system to do some butt kicking, praying to be an outlier on this drug and live a longer time.

My Autistic son is 27, looks like he will graduate from UMass but he's not ready to live independently. Hoping to live long enough to see him settled into a new living situation with some supports.
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,188
2,430
126
www.theshoppinqueen.com
Anyone that can turn Red into a down right cordial person must have a little fairy dust left over to beat this cancer. Best wishes, you're always in my thoughts.

I have used many words to describe my husband but I don't think I have ever uttered the word ". Cordial" lol!

Seriously, when it comes to my care, he is kindness personified.
 

werepossum

Elite Member
Jul 10, 2006
29,873
463
126
John, I have stage IV cancer, even if I could afford that many implants it's not something doable. Any money I have will be plowed into living expenses and some sort of trust fund for my autistic son, if there is anything left after I pass.
It's good to be realistic but stage IV cancer is not necessarily a death sentence. My uncle was diagnosed with inoperable stage IV cancer (oral cancer, metastasized into the facial bones) and given three months by two reputable hospitals. He went to Cancer Centers Of America and was told they had good news and bad news. The bad news was that those hospitals were correct; they could not do that kind of surgery. The good news was that Cancer Centers Of America's surgeons could do that kind of surgery. He was cancer free for ten more years before dropping of a heart attack in his late seventies, which is not at all bad for a three pack a day smoker. Point is that there are exciting new therapies being developed all the time and with access to a great hospital, you have a decent chance of finding something that will totally beat this thing, not just slow it down. Plan for the worst, fight for the best.

Here's hoping that you live to die of something completely unrelated at a much more appropriate age.
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,188
2,430
126
www.theshoppinqueen.com
It's good to be realistic but stage IV cancer is not necessarily a death sentence. My uncle was diagnosed with inoperable stage IV cancer (oral cancer, metastasized into the facial bones) and given three months by two reputable hospitals. He went to Cancer Centers Of America and was told they had good news and bad news. The bad news was that those hospitals were correct; they could not do that kind of surgery. The good news was that Cancer Centers Of America's surgeons could do that kind of surgery. He was cancer free for ten more years before dropping of a heart attack in his late seventies, which is not at all bad for a three pack a day smoker. Point is that there are exciting new therapies being developed all the time and with access to a great hospital, you have a decent chance of finding something that will totally beat this thing, not just slow it down. Plan for the worst, fight for the best.

Here's hoping that you live to die of something completely unrelated at a much more appropriate age.

Here's my deal, I don't have a tumor in my lung. They believe my immune system killed it..but not before it got into my lymphatic system. Basically I have tumor load in my neck, chest, under my arms and a couple in my mediastinum. This new drug Opdivo gave me 60% shrinkage after four rounds. Will I get to be a complete responder? Only time will tell. Can this drug delay progression for a long time? I sure hope so but I am not currently a candidate for surgery or radiation.
 

bradley

Diamond Member
Jan 9, 2000
3,671
2
81
If you can't exercise or eat tons of greens, then try taking liquid chlorophyll as the next best thing. Many doctors don't know much about nutrition, much less about stagnant lymph being the source of many diseases. It will help take the heavy burden off of your immune system.

Whole body vibration every day for 10 minutes or even a rebounder is another good suggestion. I've seen too many well-meaning people gobbled up by medical science and their false promises. Good luck.
 

werepossum

Elite Member
Jul 10, 2006
29,873
463
126
Here's my deal, I don't have a tumor in my lung. They believe my immune system killed it..but not before it got into my lymphatic system. Basically I have tumor load in my neck, chest, under my arms and a couple in my mediastinum. This new drug Opdivo gave me 60% shrinkage after four rounds. Will I get to be a complete responder? Only time will tell. Can this drug delay progression for a long time? I sure hope so but I am not currently a candidate for surgery or radiation.
Frankly I doubt you will ever be a candidate for surgery or radiation for cancer in the lymphatic system - it's simply far too widespread a system. I was thinking more of new techniques like genetically mapping your cancer and using targeted chemo that attacks vulnerabilities in your specific cancer rather than attacking all fast-growing cells, or techniques like the Opdivo that focus on working with your immune system rather than nuking everything that moves.

I lost a lymph node when I had thyroid cancer. Very worrisome at the time but fifteen years later I'm still clear. But then, thyroid cancer is pretty much the kiddie pool of cancers.
 

zCypher

Diamond Member
Aug 18, 2002
6,115
171
116
Was scared to see what I find when I clicked on this thread and I'm glad to hear you're still with us and the fight strong in you.

You got this!!
 

Ventanni

Golden Member
Jul 25, 2011
1,432
142
106
Just prayed for you, Geekbabe. I believe and have personally seen God do the miraculous, so that's what I'm praying for. Keep us updated!
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,188
2,430
126
www.theshoppinqueen.com
Frankly I doubt you will ever be a candidate for surgery or radiation for cancer in the lymphatic system - it's simply far too widespread a system. I was thinking more of new techniques like genetically mapping your cancer and using targeted chemo that attacks vulnerabilities in your specific cancer rather than attacking all fast-growing cells, or techniques like the Opdivo that focus on working with your immune system rather than nuking everything that moves.

I lost a lymph node when I had thyroid cancer. Very worrisome at the time but fifteen years later I'm still clear. But then, thyroid cancer is pretty much the kiddie pool of cancers.

My Oncologist has said that in many cases radiation hurts more than it helps. She did say she can and would radiate any tumor causing me difficult with swallowing or breathing. She also said if a node or two progresses on Opdivo but the rest were stable that she would radiate in that situation.
 

BoomerD

No Lifer
Feb 26, 2006
63,409
11,752
136
Hang in there, doll...and kick your old man in the junk for me.

You truly ARE one of the good ones...and this story is depressing for the rest of us. (even when it does contain a bit of good news...)

Cancer sucks.
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,188
2,430
126
www.theshoppinqueen.com
Hang in there, doll...and kick your old man in the junk for me.

You truly ARE one of the good ones...and this story is depressing for the rest of us. (even when it does contain a bit of good news...)

Cancer sucks.

LOL, you are correct, cancer does suck! I thank God for anti- anxiety medications daily!
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,188
2,430
126
www.theshoppinqueen.com
If you can't exercise or eat tons of greens, then try taking liquid chlorophyll as the next best thing. Many doctors don't know much about nutrition, much less about stagnant lymph being the source of many diseases. It will help take the heavy burden off of your immune system.

Whole body vibration every day for 10 minutes or even a rebounder is another good suggestion. I've seen too many well-meaning people gobbled up by medical science and their false promises. Good luck.

I will run your suggestions by my Oncologist, she is good & pretty famous Dr Anna Farago at MGH, spends most of her time doing research. Thank you for the tips.
 

Geekbabe

Moderator Emeritus<br>Elite Member
Oct 16, 1999
32,188
2,430
126
www.theshoppinqueen.com
Is there no antibody therapy for this ? :|

I am currently on the new drug Opdivo. LOL. They were hooking up an infusion days after FDA approval.

I had genetic testing done, I have have no actionable mutations, what I do have is mutations in P53 and APC... Neither of which give a favorable prognosis. The good news? Four rounds of Opdivo gave me 60% shrinkage so I either am positive for PD -1 or just have cancer with a high mutational burden. At any rate, it isn't in organs yet. I have gained six pounds and am trying to stay hopeful that this drug helps me till the next one comes along. I was not looking forward to my next round of tx with traditional chemo.
 
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