Dealing with Alzheimer's.. **Updated - He passed

CraKaJaX

Lifer
Dec 26, 2004
11,905
148
101
I wouldn't wish Alzheimer's on anyone.

My grandpa has been battling this God awful disease for the past 4 years or so. US Navy Vet, Masters in physics from Syracuse. He had retired as a high school principal the year I was born (87), and moved down to Florida as typical New Yorkers do once that peak is reached. He got bored within a year, and started teaching again (high school chemistry). He taught until he was 81 years old and retired happily... Yet again. One of the only people I've ever known who could literally answer 70% of the questions on jeopardy correctly and consistently. A brilliant man... taken by this plague.

As soon as the signs were noticed, they decided to pack up their stuff in Florida and move back up here with my parents. They did just that, and it worked for a long, long time. Things were noticeably different with him, but common sense things were gone. Putting salt in his coffee instead of sugar, and then finally one day deciding coffee tastes God awful... Something he drank like water for 80 years. Now it's bad. Of course there were many other things, but there's no reason to list them all.

I got a phone call Monday morning from my mom - "You need to come home immediately."..... She's known to freak out over most little things, but I could tell in her voice something was bad. Really bad. Well, the time had come where they could no longer care for him at home and had to bring him to the hospital. No one was getting any sleep, he was constantly talking.. Yelling... Crying... The bathroom thing no longer worked 'on cue'... Etc. My grandma was killing herself trying to care for him while my parents worked.

I went home Monday afternoon to see him. There was laughing, there were many tears, and there was lots of family I haven't seen in a while (funny how that works, isn't it?) Of course he has no clue who I am, who anyone is, where he is, etc... But you make the best of it. He talked to me for a long time, and I tried interpreting what he was saying to give him answers. Looking in his eyes holding a conversation (sorta) felt really good... Like he was almost there for half a second. Given his condition, I was glad to be able to see him and have some laughs doing this. One I will particularly remember is the nurse trying to give him his Meds in Apple sauce and my mom and I telling her that vanilla ice cream would be a better option... So I looked at him and said "Pa, how about some ice cream for breakfast???" to which he replied "Now you're talkin!"

Tomorrow morning he is being transferred into a local nursing home... Where he will stay until he passes. The good news is that a cousin of mine works there and he is being located in her wing. Makes this terrible time a bit easier to deal with since we know he'll be getting cared for properly. The bad news is they are destroying everyone's bank account in their path.

I decided for better or for worse, to go back home today. As I write this, I'm sitting at Penn Station waiting for my train. There will be no service, as they both did the paperwork and paid for their own cremations back in the early 90s. Knowing this made the decision to leave a little easier since there will be nothing to attend. Knowing him and the worker he was, he would WANT me to go back to work. Probably something along the lines of "get the hell back to work!". I am heading back for mothers day weekend to be with my mom and grandma, so if he's still around of course I will visit. However, I left the hospital today with my kisses and my goodbyes while he was awake and listening. I'm happy I was able to do this.

At this point I think I'm just rambling, but I wanted to get this off my chest in some way.

Stay strong Pa - You are and always will be my role model. Without you, I wouldn't be where I am today. I love you.

**Update**

Hell of a Mother's Day for me. He ended up passing yesterday morning at 10:20AM. Probably the hardest thing I've ever done, and the most terrifying thing I've ever seen.

The nurses were rolling him over every 2 hours to keep any bed sores at bay. They came in at about 10AM to roll him, and got all the sheets/pillows changed and the back support adjusted to keep him on his side. About 30 seconds after they left, I hear my mom say "oh my god" and I look to see brownish/red fluid coming out of his mouth. My heart about fell through the floor. I ran out the door to the nearest nurses station yelling for help. The nurses came running and said it was some sort of gastro-intestinal fluid. They got some swabs, new pillows, sheets, towels, etc. and cleaned it all up. They asked if we needed anything and left the room.

This event threw us all for a loop. It was absolutely terrifying to see that. We all gathered around the bed crying and laughing at jokes, trying to keep each other sane. He started breathing fast and his eyes started flickering, though all you could see were the whites of his eyes. It was like a ticking time bomb. You don't know when it's going to go .... and then it goes. I can't even begin to describe the feeling of witnessing one of your role models take his last breath. The only saving grace was that we were all there and that it wasn't in the middle of the night with no one around. What's odd is that yesterday was his moms birthday, which also happened to be mothers day. We're glad they were finally reunited. She got a great gift on her birthday.

RIP Pa. 7/16/32 - 5/8/16

:'(
 
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GagHalfrunt

Lifer
Apr 19, 2001
25,284
1,996
126
My father has been dealing with Alzheimer's for a couple of years now and it's truly an awful thing. You just can't describe it to someone who has not been there, it's 1000 times worse than you can imagine.
 

edro

Lifer
Apr 5, 2002
24,326
68
91
Grandmother has had it for 5 years, and now knows nobody.
It's very sad and awkward to visit her.
It's tough talking to her when she acts like a 1 year old, knowing she was once one of the most important people in your life.
 

DainBramaged

Lifer
Jun 19, 2003
23,448
40
91
My heart goes out to him. I don't understand Alzheimer's from personal experience; however, I feel for you, your family, and most of all, him. <3
 

TeeJay1952

Golden Member
May 28, 2004
1,532
191
106
I tell my kids that when I need more care put me in any facility they want cuz "Elvis has left the building" and how they treat what I leave behind doesn't matter.
First rule is walk away.
Second is Don't go broke for me, I am already gone.
 
May 11, 2008
20,309
1,151
126
Grandmother has had it for 5 years, and now knows nobody.
It's very sad and awkward to visit her.
It's tough talking to her when she acts like a 1 year old, knowing she was once one of the most important people in your life.

I had the same with my grandfather.
The sadness in his eyes when he realized what he had become while having a clear moment. :'(
He died shortly after...

I read about this and when i talk about it with other people, this happens often. The elderly seems gone and suddenly it is as if there is nothing wrong with them for a few minutes.
Which i always found strange but hopeful, how can elderly people be mentally gone and then suddenly are their again in "full" mental ability. Did the neurons make new connections, restoring some of the mental functioning for the time being or is it a case of poisoning ? Remove the poisoning, restore the function ?
 
Feb 4, 2009
35,254
16,725
136
If its any comfort my Grandmother battled it in the late 80s. Similar stuff to what you are describing. Ultimately she lived in her own seemingly happy world. She saw almost everyone as someone from her past. She was alert but essentially living somewhere else.
 

sandorski

No Lifer
Oct 10, 1999
70,231
5,807
126
Wow man, that sucks. The last year of my Dads life he was pretty much a vegetable. Couldn't talk, was bed ridden, and you couldn't tell if he recognized anyone. I think it would have been worse if he did talk, walk, and seem somewhat normal, but didn't know who I even was most of the time.

Best wishes for you and your family.
 
Dec 10, 2005
25,059
8,346
136
My condolences. Life really sucks a lot sometimes. My aunt's S.O. fell the other day and hit her head and suffered a brain injury (though, it's not quite clear what came first, the injury). She was suffering some memory loss the first day, but things started to look up on the second. Then she took a huge turn for the worst (a second, seemingly unrelated hemorrhage in the brain) - they rushed her to emergency surgery with the neurosurgeon telling my aunt that the odds were 70-80% against. Afterwards, she's had no pupil or reflex activity, likely as a result of the second bleed putting too much pressure on the brain stem. Today their supposed to take her off the ventilator and let nature take its course, with the only bright side being that she's likely not to enter a persistent vegetative state. I at least got to see her back in October when I went out to London and stayed with at my aunt's place, but now all I can do is sit here 3500 miles away.
 

skyking

Lifer
Nov 21, 2001
22,386
5,356
146
That really sucks, it is a terrible disease
Take care of yourselves, and know that you all did what you could. It simply becomes untenable to care for advanced alzheimer's in the home.
 

CraKaJaX

Lifer
Dec 26, 2004
11,905
148
101
Grandmother has had it for 5 years, and now knows nobody.
It's very sad and awkward to visit her.
It's tough talking to her when she acts like a 1 year old, knowing she was once one of the most important people in your life.

Don't feel awkward about it. I found that trying to understand what they're saying and coming up with an answer puts them in a state where they feel like you and them are on the same page. Their eyes may get a little wider, or they might smile, or they might respond with some excitement like "Yea!". This helped me (and want to assume it helped him) a lot.
 

skyking

Lifer
Nov 21, 2001
22,386
5,356
146
I do tech work at a nursing home, and it does help to engage everyone. Sometimes I am hustling about trying to solve a problem and have to remind myself to do it.
 

CraKaJaX

Lifer
Dec 26, 2004
11,905
148
101
Wow man, that sucks. The last year of my Dads life he was pretty much a vegetable. Couldn't talk, was bed ridden, and you couldn't tell if he recognized anyone. I think it would have been worse if he did talk, walk, and seem somewhat normal, but didn't know who I even was most of the time.

Best wishes for you and your family.

So sorry to hear that. That's exactly what I don't want to happen. I am hoping for everyone's sake that it's fast. Of course it sucks to lose anyone close, but it would be that much worse if he hung on for a few years. For his sake and for my family's sake, it would be a huge relief for everyone.
 

rudder

Lifer
Nov 9, 2000
19,441
86
91
Stay strong. Lost my dad to alzheimers. Thankfully he was cognizant most of the time and seemed his short term memory was affected most. But yes, this is a hard disease of family members. Sounds like your grandpa is in good hands.
 

Linflas

Lifer
Jan 30, 2001
15,395
78
91
We had to move my mom to a memory care facility in Feb 2015, her short term memory is completely gone. I just finished emptying her house yesterday so we can sell it, so very difficult dealing with the memories of a strong vibrant woman reduced to the state she is in now. She had really moved on with her life after my father passed in 1994, traveling and doing things she had put off for a lifetime and now she doesn't even have those memories.
 
Nov 8, 2012
20,828
4,777
146
I may have Alzheimer's but at least I don't have Alzheimer's...

In all seriousness, my dad is a stroke victim and cant even remember my name... He keeps calling me his brothers name. Its ridiculously hard to hold any conversation whatsoever, so i feel your pain.

In hindsight, it'd helped me be more tough on life, and helps me realize how important time with family is. His stroke happened while I was away in college, which is the worst possible time this could have happened. Right when I needed a dad the most to start off in the working world it was ripped out from me. Most people have someone that can teach them the ropes of living on your own with things like how to maintain a home. I did not.
 

CraKaJaX

Lifer
Dec 26, 2004
11,905
148
101
I may have Alzheimer's but at least I don't have Alzheimer's...

In all seriousness, my dad is a stroke victim and cant even remember my name... He keeps calling me his brothers name. Its ridiculously hard to hold any conversation whatsoever, so i feel your pain.

In hindsight, it'd helped me be more tough on life, and helps me realize how important time with family is. His stroke happened while I was away in college, which is the worst possible time this could have happened. Right when I needed a dad the most to start off in the working world it was ripped out from me. Most people have someone that can teach them the ropes of living on your own with things like how to maintain a home. I did not.

My grandpa got a roommate on Tuesday morning who was probably ~40 years old and suffered a stroke. First time I've actually knowingly encountered someone who's suffered from one. Very sad. Not only was half of his body paralyzed, but any questions that required an answer from him took about 45 seconds to process even if the answer was a simple "yes".
 

Imp

Lifer
Feb 8, 2000
18,828
184
106
I know someone with Alzheimer's and it sucks, but the good thing is that it was an important item in getting the person admitted to a nursing home.

In other news, I know of a hoarder junkie who's in his 70s who spends his days and nights dumpster diving. System doesn't give a fuck about him.
 

Captante

Lifer
Oct 20, 2003
30,316
10,814
136
My Grandmother had it and my mom has it as well as my father-in-law.

I was my moms primary care-giver for several years so I realize how tough it can be.

She's currently in a nursing home and will be for the rest of her life. Still recognizes me but that's about as far as it goes.

 
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Ban Bot

Senior member
Jun 1, 2010
796
1
76
I see a lot of brave and courageous people in this thread. Your loved ones would be proud of you and is a testament to their memory.
 

John Connor

Lifer
Nov 30, 2012
22,757
617
121
My grandmother had it and now my grandfather has it.

My grandmother didn't know who we were, and then one day she looked at my mom and smiled and said, "I know who you are!" And my mom said, "you do!" "You're Nancy." "That's right." And with that the facial expression disappeared and she went back into that state of mind so to speak.
 

sdifox

No Lifer
Sep 30, 2005
96,960
16,212
126
He will be fine, it's the rest of your family you need to worry about.
 
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