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lxskllr

No Lifer
Nov 30, 2004
57,889
8,157
126
Could it be a backup, 'just cause'? Throw some chemicals at it for insurance.
 
Dec 10, 2005
24,915
8,068
136
Well, they want me back at the Mayo on Thursday for "systemic therapy" which I take to mean opdivo. I've asked the medical oncology doctor but, haven't heard back yet. Thing is opdivo is usually proscribed after surgery or other treatment has failed but, I haven't received any yet. I just went back to work today so, the timing sucks but, at least I'm moving forward.

Nivolumab is a common immunotherapy, as both first and later-line therapy. It's even likely to be approved in the adjuvant setting for resected high risk melanoma (i.e., cancer free after surgery, but high risk of recurrence) due to a very successful clinical trial reported last month

A good resource to check out, if a bit on the technical side, are the NCCN guidelines. They compile information from pharmaceutical and off-label trials to create standardized guidelines (and catalog the evidence in a central repository). Drug labels aren't always updated with the latest trials and indications since they can only be amended if the company that markets it pays for it's own clinical trial.
 

MagnusTheBrewer

IN MEMORIAM
Jun 19, 2004
24,122
1,594
126
Nivolumab is a common immunotherapy, as both first and later-line therapy. It's even likely to be approved in the adjuvant setting for resected high risk melanoma (i.e., cancer free after surgery, but high risk of recurrence) due to a very successful clinical trial reported last month

A good resource to check out, if a bit on the technical side, are the NCCN guidelines. They compile information from pharmaceutical and off-label trials to create standardized guidelines (and catalog the evidence in a central repository). Drug labels aren't always updated with the latest trials and indications since they can only be amended if the company that markets it pays for it's own clinical trial.
Thanks for the info.
 
Apr 20, 2008
10,062
984
126
I'm at the hospital right now in between appointments. It is my biggest fear that a bump/growth on my wrist turns out to be dangerous. Then I read threads like this and see people handling much more complicated issues and getting through it. It puts my hypochondria at ease.
 

MagnusTheBrewer

IN MEMORIAM
Jun 19, 2004
24,122
1,594
126
I just had my consult at the Mayo and been proscribed a drug called Votrient. They're waiting on future scans to see if it's worth the trauma to remove the kidney as the actual cancer spots are quite small apparently. I don't actually begin taking the drug until October 30th. The good news is the insurance covers it with 0 copay. Yay!
 
Apr 20, 2008
10,062
984
126
I just had my consult at the Mayo and been proscribed a drug called Votrient. They're waiting on future scans to see if it's worth the trauma to remove the kidney as the actual cancer spots are quite small apparently. I don't actually begin taking the drug until October 30th. The good news is the insurance covers it with 0 copay. Yay!
I wish I could enlist you in the military and then kick you out honorably. The best thing I'll ever get from my service is health care. Only gotta worry about wait times and prescriptions, and even those are $5-7-12 for any medication depending on generics or not.
 

Crono

Lifer
Aug 8, 2001
23,720
1,502
136
I just had my consult at the Mayo and been proscribed a drug called Votrient. They're waiting on future scans to see if it's worth the trauma to remove the kidney as the actual cancer spots are quite small apparently. I don't actually begin taking the drug until October 30th. The good news is the insurance covers it with 0 copay. Yay!

Sounds like an alien race, The Votrient.
 
Reactions: Thebobo

MagnusTheBrewer

IN MEMORIAM
Jun 19, 2004
24,122
1,594
126
I wish I could enlist you in the military and then kick you out honorably. The best thing I'll ever get from my service is health care. Only gotta worry about wait times and prescriptions, and even those are $5-7-12 for any medication depending on generics or not.
I already work for the DOD.
 

MagnusTheBrewer

IN MEMORIAM
Jun 19, 2004
24,122
1,594
126
Well, I finally got squared away with Aetna specialty pharmacy for my cancer drug Votrient. They're located in Florida and sound like total flakes but, they overnighted the meds to me with zero copay so, it's all good. I got a copy of the bill they send the insurance company and the prescription is better than $11,000! Crazy games from big pharma. I go back to the Mayo January 3rd for MRI and other scans/tests. Hopefully the Votrient is doing what it's supposed to. No side effects other than low energy and occasional headaches. Thank you to the folks who've been asking and caring.
 
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MagnusTheBrewer

IN MEMORIAM
Jun 19, 2004
24,122
1,594
126
Update. The neurology docs give me a clean bill of health but, the oncology doc will tell me tomorrow if the cancer drug is doing what it's supposed to. I also see the wound care specialists regarding the ulcers on my leg. The general thought is they're a side affect of the drug and having bad venous valves. I just want to find a way to get back to work.
 

esquared

Forum Director & Omnipotent Overlord
Forum Director
Oct 8, 2000
23,919
5,058
146
Sounds like pretty good news to me Magnus.
 

lxskllr

No Lifer
Nov 30, 2004
57,889
8,157
126
Update. The neurology docs give me a clean bill of health but, the oncology doc will tell me tomorrow if the cancer drug is doing what it's supposed to. I also see the wound care specialists regarding the ulcers on my leg. The general thought is they're a side affect of the drug and having bad venous valves. I just want to find a way to get back to work.
Good luck today! Hoping for good news :^)
 

slag

Lifer
Dec 14, 2000
10,473
81
101
Stay strong MTB. Know what you're going through and the unknown can be scary. Everything will work out.
 

GobBluth

Senior member
Sep 18, 2012
703
45
91
Didn't realize I was posting to a thread from September! All caught up now. Sounds like you're getting good news MTB. Will be following your progress and cheering all the way!
 

MagnusTheBrewer

IN MEMORIAM
Jun 19, 2004
24,122
1,594
126
Update! Good news bad news from the Mayo. All three spots have totally disappeared from brain but, I do have one tiny new spot in the occipital lobe. I'm scheduled for another gamma knife procedure may 23rd. My renal cancer has continued to shrink. Over all, good news.
 
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